First Congress of Spinal Muscular Atrophy Indonesia Community

 

The first congress of The SMA (Spinal Muscular Atrophy) Indonesian community in Bandung on December 9th, 2017.

The objectives and the follow up of the congress being discussed:
(1) Establish an awareness of the SMA to the public
(2) To liaise with medical and government bodies to help the family with the SMA better access to the information and help
(3) To share the information and support for the members
(4) To establish a foundation
(5) To gain help and support for the research and the development related to the SMA by the medical experts
(6) to build a network with the institutions and the communities (national and worldwide) for information sharing and support

(Report by Jo Sutarjo )

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